** I apologize for the previous errors in this post, I didn't realize I hit Post button and I was out of town and unable to fix it.***
Yesterday was part two of the evaluation also our "no matter what they say ... our last evaluation for a while". S was her typical self at the meeting as I watched it. She did her best in all areas and in her communication she tried her hardest, she was talking in a baby voice (her uncomfortable) the whole time. It's like nails on a chalkboard voice to me.
This is basically how the conclusion of the meeting went -
"While it's interesting.... There is definitely something that is not right, but I'm not sure what it is." (We have heard this at all the evaluations and from her therapist)
- I understand this, this is what everyone says.. go on...
"While it's her memory, she truly seems like she can't remember what you said a second ago. It's not like she says"I don't know" because she is trying to get out of it. She really doesn't know. Sometime prompting her helps and sometimes it doesn't. She is delayed in her skills both in her communication, social and coping. However, I don't believe it's Autism"
- Okay when you say Autism you are speaking of Aspergers as well, correct?
"Yes"
-Then let me ask you this. Isn't no coping, social and lack of communication skills Aspergerian (is that a word) like qualities? You are telling me that my daughter can learn these with the right thearpies. But can't anyone learn these with therapies? And if so isn't that skill always a learned quality?
"I get what your saying. All I can say is that there are characteristics that are Autistic like but there are other things that don't line up or she doesn't have. Like she doesn't have an obsession with anything. Be glad she's not Autistic she can really learn these skills and application. It won't be a life long thing. However, I'm not sure if her memory is a neurological or delay. Let's take it six weeks at a time."
-What about all her sensory issues? Her overwhelming, her sense of smell that bothers her, her bouncing and clapping when excited or anxious, Her anxiety with school, What are those? Those are not delays.
"Well I'm not really sure but I'm thinking she will grow out of it."
REALLY?! Our conclusion:
S is going to start behavorial therapies once a week with both daddy and I joining her. It's the same therapies that you give with Autism. We will take it six weeks at time. We will have a journal to keep about what works and what doesn't while we try implementing different techniques. They already gave me different helpful ideas like when we hit a wall with S and we need her to understand something. If she isn't understanding it at her level drop down to an even younger age level. Let her do her baby talk but don't let her flap.
All I can say is that we will try this for now. Am I concerned about her brain? Yes Am I worried that it will be lifelong? Yes. We all have to take it one day at time. I do still feel it's more but I will take this for now. At least they see that I am not crazy, that there is something wrong. IT's interesting though that we are acting like it's autism with the same therapies but yet they say it's not.
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