Tuesday, September 27, 2011

How did it go?

S evaluation was last week and it's taken me sometime to write about it.  Mostly because to tell you the truth I haven't really wanted to share about it.  I know that's not fair that I mention it but don't say anything.  Well.. all in all I guess it went good. It went better then the one at C.A.R.E.S.

I was in the room during this testing and they were talking to her about her friends and things she likes to do.  S's conversation is never a full conversation she would answer the questions and then kind of look away.  She talked about friends that I never heard of and when asked does she play with any friends outside of school her answer was no.  If you saw previous posts that is not true.  I do take S on play dates to friends houses and one family we are really close too and go out of town with a lot plus they come over all the time. I told the lady after that S's answers were not correct.

They talked about S's rages and anxiety in the morning.  Something about her castles came up.  S NEVER PLAYS with her castles!! She never plays with ANYTHING!!! I told the doctor that makes no sense even when S has time to play she doesn't like those things. She just wakes up in a funk.

The doctor also gave S a number of IQ testing and questions.  She said that even though S's response seem strange they were age appropriate for her.  Also that she notices that S needs a lot of prompting to find the right answer.  It's not that she doesn't know it, it's just that she's not as quick as others.  She believes that S isn't necessarily Autistic but that she is delayed.

I told her I understand this however all the other intricacies don't line up.  The fact that S has this thing with smells, fits, rages, understanding of feelings, bouncing, she does this thing with her nose all the time, she gets overwhelmed when we go places (FORGET TARGET!!), etc.... I can go on and on.  What about those?  How can that be part of her delay?

The doctor said that she still needs to look over the questions and answers plus give her more testing before the diagnosis is given.  She did state that either way she believes that S needs a behavioral plan and therapies.

Basically they are saying that S can learn these skills and apply them with the right therapies.  But my question is, isn't that the same for Aspergers???? - No Social, No Coping, lacking cognitive but EVERYONE can learn and apply with time.  It just doesn't come naturally it will always be a learned action.

I'm confused..... The hubby and I don't all the way agree with the doctor but decided to drop it for two years or so then re-approcah it when S is older if we feel that she still needs it and maybe her actions aren't just passed by due to her age.

2 comments:

Kristi said...

Isabel, hang in there! As a mom of four, I know that every kid is seriously different, and we moms just want to figure out each one perfectly so we can give them exactly what they need! So many ways to feel like it's not enough, isn't it? But just keep loving them and rooting for them, and it will be enough. You are a great mom, and Salma is a terrific girl. ;)

Anonymous said...

Moms always know best go with what your heart says! Keep updating us. Heather and Richard