Saturday, April 16, 2011

Beautiful day in the neighborhood

Remember that song by Mister Rodgers, "It's a Beautiful day in the neighborhood, won't you be my neighbor." sometimes I still sing it. A lot of times I think about it in the hard moments in our day. Or if I was my neighbor, I would say NO, that lady is crazy!! Like at this exact moment if I hear "I don't want to", "Why can they..", Why can't I....", "How come..." ME ME ME ME ME ME one more time I am going to SCREAM not really though but I want to inside!! Lord, please calm me down and give me the patience that I need to endure today, I pray that S gets in a better mood as we are about to hit the road. Amen.

I found this blog post about what it's like as a parent with a kid with needs, so true good read to see what it's like. Click here

We are about to punish ourselves then reward ourselves by driving 5 hours to visit some family friends. I am so looking forward to this trip. My friend has two children around the same age as my four. We became friends through J when he was in preschool our kids were best buds and we clicked. She is my friend that in the good and the bad I want to run too. My revitalizer, her strength and faith are an encouragement to me. Plus, our kids LOVE each other.



Yesterday was gorgeous here. We spent the day at the tide pools, and pizza for dinner. Everyone loved it!! I couldn't stop secretly crying inside that one day all of them will be so grown up. We honestly did not have too many break downs, they were all handled in a timely manner. J and S love laughing together and he loves teaching and showing her new things since he's a whole year older (sarcasm). One day though will it just stop? Will her innocence and questions still go while he just understands things?

I did receive a call back from both C.A.R.E.S and Children's Hospital. C.A.R.E.S wants to set up an appointment with me and daddy. I am a little nervous though since I don't know how in depth the evaluation will be with them. They meet with us for an hour then we come back another day for 2hours, then we come back again to talk about the diagnosis. My concern is that with ASPERGERS how do they see it?
I spoke to her previous doctor at Children's regarding the PDD-NOS/TRAUMA evaluation given to her and everything that I described to her she said was not trauma related since that has approved but more related to the autism. She gave me a number to call at the Autism Discovery Institute they just opened to see if anyone can help me but they didn't know where to send me. Oh well the weekend is upon us and this can wait till next week.
Questions for anyone that can answer regarding Aspergers:
1. What do you do when your kid has a tantrum, do you ignore it?
2. Time outs they don't work do they?
3. Do you ignore your kid when they do wrong funnies or do you correct them?

I also signed more papers with the attorney regarding the adoption, so that we can keep going forward. I received our packet of adoption paper work and OH MY it is a lot of stuff. Fingerprints, medical forms, birth and marriage certified certificates, ya-da, ya-da, ya-da.

SERIOUSLY anyone want to work for me for free and experience. You get to learn how to run your own business, be a personal assistant to four little people, an advocate on autism, a psychologist at times, counselor, driver and cook.

Have a great weekend, see you in four days.......



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