Wednesday, October 19, 2011

Journey

Today I am sacrificing my 60 day commitment to Insanity (yes, I am a sucker for info-commericals) to blog.   We've have had our highs and lows.    This is regarding some other personal issues that I don't quite share here.  However on the other front of life things are going good.  S has been going to  Pivotal/ Social therapy at Children's Autism Institute once a week with Daddy and I.  The tools from the last couple of meetings are very helpful.  We have been working on prompting S to converse and talk and this week is a lot of one on one social play with us to help build those skills.  To her it's fun, to us we see all that we don't think is quite right/appropriate.  I am learning to let this go and just enjoy S for the blessing that she is.

We received the report back from Children's and no they didn't diagnose her with Aspergers.  To tell the truth they don't know quite where she fits.  They do know that she needs these therapies to learn skills that she doesn't have and that she lacks all things that people with Aspergers do however, there are a few things that don't line up. We will take it six weeks at at time.

Daddy and I still feel that it is Aspergers (at least I do) but we believe that S is so young that it's hard to see that now.  We decided to wait at least two years to re-evaluate then we will see where she is at.    The hard part about diagnosing S is that she is our adoptive daughter.  They don't know a lot about her infancy, even though I have described it time and time again ( I did know her).  They want to say it's Trauma (it's not we've already been down this route).  I know that she was not taught correctly at a young age and therefore missed out on some prime skills that you learn at these ages which has even hindered her more so.  She is very young for a six year old, in all areas.    We are learning to be patient, to take the help that we are getting, to grow from it and in time things will change one way or another.  Girls with Aspergers are rare and I find that most people don't know about the differences between boy/girl.  Oh well... one step at a time.

On the adoption front... it seems like the adoption court date is taking forever to receive.  We are anxiously waiting.  S and M keep asking about it, so do the other two and for all of us it couldn't get here soon enough.  Please keep praying that it comes soon for so many reasons.

Our anniversary of two years has come and went of being blessed with S and M in our lives.  These two have grown so much and so has our family.  They have taught us so much about Love and the never ending love that God instills in our hearts.  Mommy, Daddy and J and K love you both so much! xoxo

One thing that I never mentioned here... is that I have lost a child in my life as so many women have.  It's one of those things that you never know if your going to stop thinking about it.  I was in my early second trimester when we lost ours.  I believe that everything happens for a reason and God took our child to bless us with two others that so needed a family.  Our third little bundle would have been born on October 15, 2009 instead S and M came to live with us on this exact date!!  We could not have planned this and God's infinite wisdom knew.  So as we rejoice in this date, I also in my mind and heart count down the age of the one lost...

Next week is S's IEP meeting, I feel so lost with that meeting.  There is so much to note and say and I don't even know what to do. I've been in them before and you can just get ran over if you don't know what your doing.   S's behavioral therapist is putting together some notes for me so hopefully that helps.  I will take any tips if anyone wants to share...


FUNNY S'ism - We are in the dressing room. S is trying on clothes... She asks me "Mommy why do you have to put your milk in?"  Me: What Milk? Where? I don't have any milk?   S: "You know mommy in those (makes cupping hands over her chest)"  Me: On no milk in those... this is called a bra and when you get older we wear these like an undershirt.

GOTTA LOVE HER!!!

1 comment:

Brandy said...

Let's be sure to chat before the IEP! :)