A couple of days ago, I sat down and thought "I'm going to writhe the raw truth about what I think at times". I talk a lot about what is going on and it is the honest truth, I say I pray a lot which I do however, sometimes moments get so hard it's hard to find the light at the end of the tunnel. To be honest the last couple of weeks/months have been emotionally hard. Come on!! I have a child with disabilities, one with ADHD, a super perfectionist and a TWEEN. It gets crazy and in those moments to be honest thoughts of running away and never coming back, crashing the car, to do anything but what I'm doing or feeling. In reality I can honestly say I would never do anything to take away from my kids, to hurt my children, I love and live for them. This is how I was feeling, when a teacher of my daughters came to me and told me that she supports my fight for my child and that her daughter has Aspergers and that she has had to go through the same struggles and how much our children our alike. Sometimes just hearing your not alone and that others have gone through this means so much. It really filled my hope and helped me to press on for our IEP and a OFFICIAL DIAGNOSIS. I also may have scheduled someone like a therapist for myself to talk too.
With all that said we have had our FINAL IEP meeting this year. The group of people that have came beside me through the Charter school have been honest and a blessing. They did a full assessment on Salma and said that up front meeting her they never would have guessed what the tests would show. My daughter has a five year old perspective of facial recognition, understanding of words and viewpoint. Meaning she doesn't get tone of voice, faces and only can view something one way if that is the way she first saw it as. She's turning 10 in January... words are lost to express what is like to see that on paper even though you know what your gut has been telling you.
Her writing is also low, with a disability in sentence memory, this is tool that we all use when we sit in class and listen to teacher instruct us. She cannot retain information this way and will miss huge chunks of a general idea. This is why I repeat myself so often in the day and everything has to be taught in a manipulative or visual way. There was so much more information that came to validate things that I already knew. Her mobility is low for her age, meaning she can't comprehend certain muscle moments to copy a task or request. To sum in all up I wasn't the only one thinking my daughter has a disability so did her teachers that see her twice a week. With everything the IEP was given to her based on Autism like qualities under Special Education.
Now I can take the psychologists report, the academic, the speech and language assessment and FINALLY get a full legit diagnosis. I'm not crazy!! I love my daughter and am blessed that the school will provide with the needed tools and weekly social group, a every other week in home tutor for writing , reading comprehension, phonics.. FIVE YEARS of fighting for people to see what I knew. Now seeing the exact age of level that my daughter is at.. What do I do with that? Hold strong, and have hope.
My goal for S to be INDEPENDENT to know how to do things on her own. Weather that is school work or just every day functioning without reminders. To learn to control herself so that I'm not carrying a nine year old girl with a tantrum to the car.
Thank you for hanging in there with us. I hope this is helpful and hopeful. Onto the diagnosis process now.
No comments:
Post a Comment